Ai carumba.
Nov. 11th, 2006 05:14 pmPray to every god you know/believe in/don't believe in that you never have to watch a loved one suffer dementia of any type.
My aunt called Hubs!monkey at home last Thursday, concerned that my dad didn't sound quite right. "Didn't sound quite right" is a serious understatement. I wrapped up a few loose ends at work, told the boss that I needed to roll out of there on a family emergency, and a week later here I am still at Dad's house TRYING LIKE MAD to take care of someone who it seems has the confused mind (and stubborn behavior) of a four-year old. I have a host of trials ahead, and I don't know how/if I can stay sane for this. I think I've gotten most of the crying out of the way - when Dad didn't seem to know who am I (and I'm still not convinced he really knows), it just about killed me.
My dad, it turns out, hasn't been taking very good care of himself (he's diabetic), and as it also turns out, he hasn't been telling me everything I need to know about his health. I suppose if I were a better daughter, I'd have pulled the info out of him with a red-hot poker and a set of salad tongs. The CAT scan's been scheduled, and his doctor wants additional blood work. There are health problems on top of the dementia because of course one disaster on its own is never quite enough.
There's a ton of stuff I want to write but can't, at least right now. I should have visited more. I should have pried open his grief over Mom's death, should have taken a really good look inside that squirrely brain of his.
There are a ton of things I need to do to get his affairs in order, the most worrisome detail of which is, how will the dementia/Alzheimer's affect what needs to be done? Power of attorney is the first thing I need to take care of. He doesn't have another appointment until Friday, so the next week will find me on the phone getting the info I need in order to get started.
This is the first time in a week that I've been online. I've been spending my time pretty much shadowing Dad's every shaky move - he's pretty weak, he's confused, and he's living in a split level with three sets of stairs. OH MY GOD. So yeah, not a ton of time spent in an unworried state. I'm glad I brought my laptop because I need a little sanity in my life, seeing how everything else is so uncertain. I'm going to spend a few hours surfing (I hope; for some reason I keep connecting at verrrrrrrrrrrrrrry slow speeds), so we'll see what happens. If nothing else, I can write!
Pray for me, kids. I need it.
My aunt called Hubs!monkey at home last Thursday, concerned that my dad didn't sound quite right. "Didn't sound quite right" is a serious understatement. I wrapped up a few loose ends at work, told the boss that I needed to roll out of there on a family emergency, and a week later here I am still at Dad's house TRYING LIKE MAD to take care of someone who it seems has the confused mind (and stubborn behavior) of a four-year old. I have a host of trials ahead, and I don't know how/if I can stay sane for this. I think I've gotten most of the crying out of the way - when Dad didn't seem to know who am I (and I'm still not convinced he really knows), it just about killed me.
My dad, it turns out, hasn't been taking very good care of himself (he's diabetic), and as it also turns out, he hasn't been telling me everything I need to know about his health. I suppose if I were a better daughter, I'd have pulled the info out of him with a red-hot poker and a set of salad tongs. The CAT scan's been scheduled, and his doctor wants additional blood work. There are health problems on top of the dementia because of course one disaster on its own is never quite enough.
There's a ton of stuff I want to write but can't, at least right now. I should have visited more. I should have pried open his grief over Mom's death, should have taken a really good look inside that squirrely brain of his.
There are a ton of things I need to do to get his affairs in order, the most worrisome detail of which is, how will the dementia/Alzheimer's affect what needs to be done? Power of attorney is the first thing I need to take care of. He doesn't have another appointment until Friday, so the next week will find me on the phone getting the info I need in order to get started.
This is the first time in a week that I've been online. I've been spending my time pretty much shadowing Dad's every shaky move - he's pretty weak, he's confused, and he's living in a split level with three sets of stairs. OH MY GOD. So yeah, not a ton of time spent in an unworried state. I'm glad I brought my laptop because I need a little sanity in my life, seeing how everything else is so uncertain. I'm going to spend a few hours surfing (I hope; for some reason I keep connecting at verrrrrrrrrrrrrrry slow speeds), so we'll see what happens. If nothing else, I can write!
Pray for me, kids. I need it.
no subject
Date: 2006-11-11 10:31 pm (UTC)My great grandmother had Alzheimer's and while it wasn't as "sudden" as your dad's seems to have been, once her disease was "full blown", it wasn't long til she rarely recognized anyone other than my grandfather (her son).
My thoughts are with you.
no subject
Date: 2006-11-11 10:44 pm (UTC)Hope things turn out okay soon.
no subject
Date: 2006-11-11 10:45 pm (UTC)no subject
Date: 2006-11-11 10:52 pm (UTC)no subject
Date: 2006-11-11 11:07 pm (UTC)I'm not sure where you are, but my mother gots lots of good information, referrals (and contact with a support group) from our county's Council on Aging. Hopefully you have something similar locally.
{{{{{more hugs}}}}}
no subject
Date: 2006-11-11 11:26 pm (UTC)I didn't mean to ramble on about my own situation, just that it was fresh in my mind since I just returned from seeing her for a week. I'm praying hard for you and your dad and sending huge hugs.
no subject
Date: 2006-11-11 11:33 pm (UTC)no subject
Date: 2006-11-12 12:03 am (UTC)no subject
Date: 2006-11-12 12:19 am (UTC)I had a visit last week from my 71 year old mother. She told me a story about her friend Dolly and how painful it was for mom last year when most of the time Dolly didn't know who she was. Dolly's doctor changed her meds (I wish I knew what it was she was taking), and now Dolly is back to her old, sharp and alert self. So, there must be new medications out there for Alzheimer's. I sure you dad's doctor will be looking into everything. Try to stay positive.
no subject
Date: 2006-11-12 12:53 am (UTC)I hope the doctors can do something positive in terms of treatment to improve the situation, or at least come up with a solid diagnosis so that you have a better idea of how things stand.
I know how hard dealing with something like this can be. Don't forget to take good care of yourself in the middle of it all.
no subject
Date: 2006-11-12 02:00 am (UTC)what a hard place to be - there's so much emotional and logistical crap to deal with at the same time. I remember how my grandmother's decline troubled my mom (and other local-area relatives); but there wasn't much to be done medically for her.
lots of more recent advances hopefully mean your dad will respond positively - I'm thinking of you!
no subject
Date: 2006-11-12 02:43 am (UTC)no subject
Date: 2006-11-12 03:13 am (UTC)no subject
Date: 2006-11-12 03:47 am (UTC)no subject
Date: 2006-11-12 04:09 am (UTC)I will keep your dad (and you and your hubby) in my thoughts and prayers.
no subject
Date: 2006-11-12 12:42 pm (UTC)no subject
Date: 2006-11-12 11:38 pm (UTC)no subject
Date: 2006-11-13 01:23 am (UTC)no subject
Date: 2006-11-13 06:29 am (UTC)You've got every bit of love and support that I can squeeze out.
no subject
Date: 2006-11-13 06:48 pm (UTC)Dementia is so tough. My aunt was just diagnosed with a mix of Alzheimer's and Parkinson's, and it was very sudden as well. I just wanted to say my thoughts and prayers are with you and your family.